Find What You Need
Living with Sjogren’s can mean juggling symptoms, appointments, test results, questions, products, and a lot of information.
I’ve created and collected resources to help with different challenges along the way.
You don’t need everything. Start with what you need right now.
Get Organized
These tools can help you organize symptoms, health information, and appointment preparation.
Sjogren’s Disease Symptom Checklist
When symptoms affect different parts of the body, it may not be obvious that they belong in the same conversation.
The Sjogren’s Disease Symptom Checklist helps you organize what you’ve been experiencing so you can see the bigger picture more clearly.
Healthcare Appointment Summary
When symptoms, medications, specialists, test results, and questions start piling up, this summary helps you organize the information you most want your healthcare provider to understand.
Take Back What You Can
Living with a chronic medical condition can leave you feeling like so much is outside your control.
The Take Back What You Can Method helps you identify areas you may be able to influence, recognize patterns, and think more intentionally about your routines and day-to-day symptom management.
It’s about working alongside your healthcare team while recognizing where your own observations, preparation, and choices may matter.
Prepared to Be Heard
Doctor appointments can move fast, especially when you’re trying to explain multiple symptoms or concerns.
The Prepared to Be Heard Guide helps you focus on what matters most, explain how symptoms affect your daily life, prepare your questions, and leave knowing what happens next.
Need More Support?
Jody’s Waiting Room is my private Sjogren’s community where the information I’ve gathered through patient education, advocacy, research, and living with Sjogren’s comes together.
It’s also where all of my resources live, so you can learn, find support, and figure out your next step in one place.
Keep Learning
Coffee with Jody
Some Sjogren’s topics deserve more than I can fit into a short social media video.
Coffee with Jody is my newsletter where I take a deeper look at Sjogren’s symptoms, research, questions, and topics worth understanding.
Products I Use
Finding products for day-to-day symptom management can involve a lot of trial and error.
I’ve gathered some products I personally use or recommend in my Amazon storefront so they’re easier to find in one place.
What works for me may not work for you. These are simply options to explore – not products everyone with Sjogren’s needs.
My Amazon storefront is primarily intended for shoppers in the United States.
RHEO
Dry mouth can affect far more of your day than people realize.
RHEO is a dry-mouth product I personally use and has become part of my own routine. I’ve made it easy to find here for anyone interested in learning more.
RHEO can be purchased directly through Oral Pouch Solutions.
Discount code: JODY10
Start With What You Need
You don’t need every resource today.
Start with the problem in front of you.
Learn what you can about it.
Then choose the resource that may help you take your next step.
DISCLAIMER
These resources are provided for education, organization, and patient advocacy. Individual experiences with Sjogren’s Disease and symptom-management strategies can vary.
This information is not intended to diagnose, treat, or replace individualized medical advice from a qualified healthcare professional. Please discuss your individual symptoms, diagnosis, medications, treatment, and medical decisions with your healthcare team.