I’m Going Through Diagnosis
I’m Going Through Diagnosis
Getting answers isn’t always as simple as taking one test.
You may be juggling symptoms, appointments, specialists, test results, and years of medical history—all while trying to understand what’s happening in your body.
That can be a lot to piece together.
Start with what you know.
Your symptoms, when they started, how they’ve changed, what makes them better or worse, and how they affect your everyday life can all help your healthcare team see a clearer picture.
You don’t need to prove you have Sjogren’s disease.
Your job is to bring the clearest information you can. Your healthcare team’s job is to investigate what that information may mean.
Step 1: Track Symptoms
Start by looking at the whole picture.
The Sjogren’s Symptom Checklist can help you identify symptoms you may not have realized were worth mentioning and decide what you want to discuss with your healthcare provider.
Step 2: Prepare to Be Heard
Your symptoms are only part of your story.
Your timeline, medical history, testing, specialists, how your symptoms have changed, and how they affect your everyday life can provide important context.
The Prepared to Be Heard Guide helps you build that story before your appointment—organizing what matters most and preparing to communicate it clearly.
Step 3: Summarize It
Once you’ve done the preparation, you shouldn’t have to reconstruct your entire health history from memory during an appointment.
The Healthcare Appointment Summary gives you one place to capture the most important information you want your healthcare provider to know.
You may not control how quickly you get answers.
But you can walk into the process more organized, more prepared, and better able to communicate what you’re experiencing.
That matters.