Meet Jody
I’m a person living with Sjogren’s disease, a patient advocate, and the person behind Sjogren’s with Jody.
I created this space because I know how overwhelming it can be when symptoms don’t seem to fit together, answers take time, and you don’t know what to ask next.
What started as sharing my own experience has grown into a place for education, patient advocacy, practical resources, and connection.
The Space in Between
Your appointments may only happen a few times a year. But life with Sjogren’s happens every day.
New symptoms appear. Questions come up. Something changes. You wonder what matters, what you should track, or what you should bring up at your next appointment.
That’s the space in between — and it’s where I can help.
I’m not here to replace your doctor, diagnose you, or tell you what treatment you need. I’m here to help you learn, organize what you’re experiencing, ask better questions, and feel more prepared when you sit down with your healthcare team.
Why I Do This
My own experience taught me that one symptom, one test result, or one appointment rarely tells the whole story.
That led me to start asking more questions, researching Sjogren’s disease, and sharing what I was learning.
Today, I help people better understand what they’re experiencing, ask better questions, and become more informed participants in their own healthcare.
Now What?
It’s one of the biggest questions that can come after a diagnosis:
“I have Sjogren’s. Now what?”
That question is behind so much of what I create — education, practical resources, deeper conversations, and places to connect.
Because sometimes the hardest part isn’t knowing you have Sjogren’s. It’s knowing what to do next.
Looking for Answers?
Maybe you’ve just been diagnosed. Maybe you’ve lived with Sjogren’s for years. Maybe you’re still searching for answers.
You don’t need all the answers.
My goal is to help you become more informed, more prepared, and better equipped to advocate for yourself.
You just need somewhere to start.
Important Information
The information and resources shared through Sjogren’s with Jody are for education, organization, and patient advocacy. They are not medical advice and are not intended to diagnose, treat, cure, or replace care from a qualified healthcare professional. Please discuss questions about your individual health and care with your healthcare team.